Beskrivelse
- my life as a rarity.
Ehlers-Danlos Syndrome is probably the most overlooked physical handicap in the world. A genetic hiccup changes your body completely, and as you look "normal" , nobody understands why you can't BE normal. Not even your doctor, who may have forgotten all she ever heard about the rare syndrome.
The author has fought for a "normal" life for 77 years. It didn't become normal, but both interesting and meaningful in spite of her invisible enemies: Her own shame of not being like everybody else, and an environment - including the medical world - that was convinced her problems "were all in her head".
Her kind of EDS, the classic, only appears in 1 in 20.000 people. Some believe as few as 1 in 40.000. Other variations - there are 13 in all - are far more common. You may have heard of people who suffer from one of them. You may even know one.
Yderligere information
| Forfatter(e) | Dorrit Barrett |
|---|---|
| Kategori | Bøger |
| Genre(r) | Biografier |
| Udgivelsesdato | Er udgivet |
| Sprog | Engelsk |
| ISBN-13 | 9788743030768 |
| ISBN-10 | 8743030769 |
| Indbinding | Paperback |
| Udgave | 1 |
| Oplag | 1 |
| Sidetal | 206 |
| Dimensioner | Bredde: 20Cm - Højde: 32Cm |
| Tags | Ehlers-Danlos Syndrome (Eds), Rare Handicaps, Medical Shortcomings, Respect And Knowsledge, A Better Future, One In Thousands, Bøger, Bog |
