Beskrivelse
Ehlers-Danlos Syndrome is one of the most overlooked physical disabilities, often invisible yet life-changing. Despite looking "normal," those affected face daily challenges that many, including doctors, fail to understand.
A personal journey through life with a rare and misunderstood genetic condition.
The author has spent 77 years striving for a "normal" life. While normalcy remained elusive, her journey became both fascinating and meaningful despite battling invisible foes: her own feelings of shame for being different and a medical community that often dismissed her symptoms as psychological.
This book focuses on the classic form of Ehlers-Danlos Syndrome, which affects roughly 1 in 20,000 people, with some estimates as rare as 1 in 40,000. There are 13 types of EDS in total, and while the classic form is rare, other variants are much more common.
You might have heard of people living with these other types, or perhaps you even know someone affected by them.
Yderligere information
| Forfatter(e) | Dorrit Barrett |
|---|---|
| Kategori | Bøger |
| Genre(r) | Biografier |
| Forlag | Books On Demand |
| Udgivelsesdato | Er udgivet |
| Sprog | Engelsk |
| ISBN-13 | 9788743030768 |
| ISBN-10 | 8743030769 |
| Indbinding | Paperback |
| Udgave | 1 |
| Oplag | 1 |
| Sidetal | 206 |
| Dimensioner | Bredde: 20Cm - Højde: 32Cm |
| Tags | Ehlers-Danlos Syndrome (Eds), Rare Handicaps, Medical Shortcomings, Respect And Knowsledge, A Better Future, One In Thousands, Bøger, Bog |
| GPSR | Produktsikkerhed |
